Hello friends,
Just wanted to let everyone know that Micah has been officially discharged and we will be headed to IL for a few days before going home to TN. We'll see how this works for Micah when all of the dose adjustments have been made. Thanks for your prayers!
Blessings,
Tina
Monday, June 28, 2010
Saturday, June 26, 2010
June 26, 2010
Hello friends,
Just a quick note to say that the surgery went well, we are in the PACU with Micah and he is just starting to wake up. I will need to stay here with him until at least Monday 28th so that the doc can watch him and adjust his med dose according to what we see happening with his tone. At the moment he is cut back to half the dose he was getting. By this evening, or at the latest tomorrow morning, we should know which direction (up or down) we need to go with the dose. Thanks for your prayers!
Blessings,
Tina
Just a quick note to say that the surgery went well, we are in the PACU with Micah and he is just starting to wake up. I will need to stay here with him until at least Monday 28th so that the doc can watch him and adjust his med dose according to what we see happening with his tone. At the moment he is cut back to half the dose he was getting. By this evening, or at the latest tomorrow morning, we should know which direction (up or down) we need to go with the dose. Thanks for your prayers!
Blessings,
Tina
Friday, June 25, 2010
St. Louis trip
Dear friends,
We got to Tina's parents house on Wednesday night. It is a little over an hour east of St. Louis. Josiah, Elizabeth, Matthew and Daniel are with Tina's parents. Abigail is gallivanting around somewhere in Kerala, India with my parents and Samuel is somewhere on a beach in St. Simons Island with some friends!
Tina and I were in St. Louis yesterday for a contrast study CT scan and bolus through the pump (extra dose of Baclofen). The CT showed that the pump was functioning properly but the bolus had no effect. So today we are back in St. Louis to do another trial with direct injection of the Baclofen. This will be administered through a lumbar puncture (kind of like a reverse spinal tap). He will stay in the hospital for observation over a period of 6 hours. We are not sure if we have to stay overnight. If we have positive results from today we have a couple of options. Change in dosage and/or repositioning of the catheter inside the spinal column (involves surgery). As you can see it is a try and see what happens method! So that's what is going on today. Surgery could possibly be tomorrow or Monday. I will probably return after the weekend to Jackson to get back to work (we drove separately just in case this happened). Please continue to hold us up in your prayers.
"I will lift up my eyes to the hills. Where shall my help come from?
We got to Tina's parents house on Wednesday night. It is a little over an hour east of St. Louis. Josiah, Elizabeth, Matthew and Daniel are with Tina's parents. Abigail is gallivanting around somewhere in Kerala, India with my parents and Samuel is somewhere on a beach in St. Simons Island with some friends!
Tina and I were in St. Louis yesterday for a contrast study CT scan and bolus through the pump (extra dose of Baclofen). The CT showed that the pump was functioning properly but the bolus had no effect. So today we are back in St. Louis to do another trial with direct injection of the Baclofen. This will be administered through a lumbar puncture (kind of like a reverse spinal tap). He will stay in the hospital for observation over a period of 6 hours. We are not sure if we have to stay overnight. If we have positive results from today we have a couple of options. Change in dosage and/or repositioning of the catheter inside the spinal column (involves surgery). As you can see it is a try and see what happens method! So that's what is going on today. Surgery could possibly be tomorrow or Monday. I will probably return after the weekend to Jackson to get back to work (we drove separately just in case this happened). Please continue to hold us up in your prayers.
"I will lift up my eyes to the hills. Where shall my help come from?
My help comes from Jehovah, who made Heaven and earth"
Shalom
Thomas
Tuesday, June 22, 2010
June 22, 2010
Hello friends,
Just a quick update to let you know our schedule for the weekend. Micah is scheduled for a CT (dye injection) and also the comparison test that I mentioned before on Thursday afternoon. The surgery will be the following day in the late morning. Thank you for your prayers for him, I will post results via the blog and FB also.
One other thing that I forgot to mention in the last blog was that I had gone to pick Micah up from school one day and all the teachers told me that I needed to pursue a different class for Micah as he was too smart to be put in their class : ) It's always nice when someone else sees what you knew was there. So, we have started the process of moving him up. That's all for now.
Blessings,
Tina
Just a quick update to let you know our schedule for the weekend. Micah is scheduled for a CT (dye injection) and also the comparison test that I mentioned before on Thursday afternoon. The surgery will be the following day in the late morning. Thank you for your prayers for him, I will post results via the blog and FB also.
One other thing that I forgot to mention in the last blog was that I had gone to pick Micah up from school one day and all the teachers told me that I needed to pursue a different class for Micah as he was too smart to be put in their class : ) It's always nice when someone else sees what you knew was there. So, we have started the process of moving him up. That's all for now.
Blessings,
Tina
Monday, June 14, 2010
June 14, 2010
Hello friends,
It seems it has been a while since I was last on here, sorry. Life is busy these days. I don't have time for too much this morning, but I wanted to update you on a couple of things.
First, the summer school for Micah is going well and he seems to enjoy it, but the bus rides are a little much. The mornings are okay, but coming home it has been really hot. He rides for almost an hour each way and the bus has no AC and with the high temps and humidity it's been difficult for him.
Second, we are headed to St. Louis on the 23rd of this month. We will take Micah for an outpatient test on the 24th and then on the 25th he is scheduled for his surgery. He will have to stay in for 2-3 days depending on how he does. If he is not in too much pain we will come home, but if he is then we may stay at my parents an extra day or so. Please pray that all would go well with him and that he would heal quickly. I must admit that I'm a bit worried about the surgery because after his last one he quit doing everything he had been previously doing. It was a long time before he tried to use his hands again.
Many blessings to each of you and thank you in advance for your prayers.
Tina
It seems it has been a while since I was last on here, sorry. Life is busy these days. I don't have time for too much this morning, but I wanted to update you on a couple of things.
First, the summer school for Micah is going well and he seems to enjoy it, but the bus rides are a little much. The mornings are okay, but coming home it has been really hot. He rides for almost an hour each way and the bus has no AC and with the high temps and humidity it's been difficult for him.
Second, we are headed to St. Louis on the 23rd of this month. We will take Micah for an outpatient test on the 24th and then on the 25th he is scheduled for his surgery. He will have to stay in for 2-3 days depending on how he does. If he is not in too much pain we will come home, but if he is then we may stay at my parents an extra day or so. Please pray that all would go well with him and that he would heal quickly. I must admit that I'm a bit worried about the surgery because after his last one he quit doing everything he had been previously doing. It was a long time before he tried to use his hands again.
Many blessings to each of you and thank you in advance for your prayers.
Tina
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