Tuesday, September 15, 2009

Mon. 14th 12 AM

Dear friends I am so touched by all the kind words and prayers.  Today has been very difficult.  While waiting for the neck brace and breathing tube to be removed God gave me some verses:

"...I will trust in the mercy of God forever & ever.  I will praise You forever because You have done it:  And in the presence of Your saints I will wait on Your name, for it is good."
Ps. 52:8a-9

To go along with this was a song I could not get out of my head.  I literally sang it for hours to Micah and myself.

"Tis so sweet to trust in Jesus, just to take Him at His word.
Just to rest upon His promise, just to know thus saith the Lord.
Jesus, Jesus how I trust Him, how I've proved Him or and or.
Jesus, Jesus precious Jesus, Oh for grace to trust Him more."

Micah did get His breathing tube out today and is breathing very good on his own which is wonderful the collar is still on as there is still a little edema.  He is doing all the things he is supposed to be doing right now.  But now is a very difficult time for us as he is "posturing" quite a lot.  As explained to me:  His brain has a thousand things whirling around inside trying to tell him what to do and his body is trying to do all of them at the same time. 
It comes out as stiffening, twisting and contorting of the body, fixed pupils that make him look like a wild animal backed into a corner.  His heart rate will soar and he clenches his teeth so tight that he made one loose.  They put a bite block in to save his teeth from more damage.  It is very difficult to see your child going through this.  Sometimes all I want to do is run to a corner and cry ( I do take time for that), but always God keeps pulling me back to remind me that we are not here only for Micah.  There are many hurting people in this ward that do not have the hope that we do and God is allowing us to start to meet some of them to encourage them and pray for them.  My child is in God's hands and He is more capable than I am to take care of him.  I ask that you will pray for our peace of mind that we do not miss what God has for us to do here because we are too busy having our own little pity party.  I don't often want to leave my child's side, but God is pushing me out at times so that I can listen to Him.  God is giving us times of joy and peace in the storm so that we can share our hope with those around us. 
We are currently waiting on results from another CT scan.  The doctors wanted to make sure that there was nothing else going on behind the scenes of the posturing. 
One other note, we have been so blessed with not only good nurses, but christian nurses that it just amazes me.  God is good. 
Blessings to each of you.


  1. We are praying for you, Micah, Thomas and your entire family. We are believing for the miracles to continue. Love The Wise Family

  2. I prayed for you all as I went off to sleep last night, I am praying for you now, and this is my prayer for you today: "But You, O Lord, are a shield about me, my glory, and the lifter of my head. I cried aloud to the Lord and He answered me from His holy hill. I lay down and slept; I woke again, for the Lord sustained me. I will not be afraid...." Psalm 3:3-5,

    With much love, Chris Veteto

  3. Know that you are constantly in our prayers...
    We have been praying for restoration and the the Holy Spirit will saturate you with peace and strengthen you physically and emotionally.
    Be filled with the JOY of the Lord.
    Love you guys!
    Mary, Hana and Duh

  4. "Peace, peace wonderful peace, coming down from the Father above. Sweep over my spirit forever I pray with fathomless billows of love".

    Singing this to Micah, this morning.
    Linda Arreguin

  5. I am praying that God will do a great work in Micah. Also, I am praying for you, Tina and Thomas.
    God will take care of you,
    Loyce Ann Frankland

  6. Thomas, I am blessed by your trust in God in this deep struggle. Terri, Stephen, and I are praying for Micah and all of you often. The people of God stand with you. I know that when we are weak, the HE is strong! Rest in HIS strength as you make this journey of ups and downs!
    We love you . . . The Thrashers

  7. Yes, it is so sweet to trust in Jesus,
    just to know thus saith the Lord.
    We have been praying for you all Tina, much love to you, Thomas, Micah and all the children.