Sunday, September 20th, 1:50 am

Today begins the 10th day since Micah was admitted to the hospital. It has been quite a whirlwind. Sometimes we don't know what day or hour it is. It has been just over a day since he was moved from the critical care unit to a regular floor. He is on a couple of medications. One is to control his thalamic storms which greatly reduces the intense posturing that had been occurring. The downside of this is that it makes him sleep a lot. We are trying the find the happy medium where he does not have so much of the drug that it inhibits his brain activity but too little of it will result in the recurrence of the posturing. The other drug is to help him maintain a steady blood pressure. The tooth that is lodged in his esophagus is going to be removed using a probe. We have decided to let the doctors put a G-tube in him. It will make it easier to feed him and get the tube out of his nose which seems to bother him. While under sedation for these procedures they will also make a cast for his teeth so they can form a custom bite block. He has loosened one of his lower front teeth and has already busted out two of his molars from grinding his teeth. Fortunately they were baby molars.
       Our care conference with all the doctors concerned brings us no surprises as Tina mentioned in an earlier blog. Unless the Lord restores Micah in a miraculous way, we are looking at a severe long term disability with some progress through therapy and all that stuff. No one can predict what that entails. Has this affected how we pray or believe? NOT ONE BIT! But we are faced with some decisions to make as long as his current state exists. He is unable to do anything for himself. He still has to be fed, cleaned, given physical therapy etc. etc. So how do we reconcile what we believe with present reality? This is always a pivotal point in our understanding (or the lack of it) on the part of God's will that He has not made clear. I have come to the conclusion that while we wait for the miracle, we must respond to what is clear in the present. This does not mean in any way that we are compromising what we believe. I am beating with a sledge-hammer on God's door. He will never have to say that I didn't ask, seek or knock! My tears flow steadily in His throne room. We are spent at the end of each day. I am being transparent about our frailty because I want you to see that the Grace of God and His presence overshadows it. We are able to still believe, still pray for others, still keep pressing on because of His presence.
But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. (2Cor 12:9)
Thank you for all your prayers, comments and encouragement. Continue to believe and pray with us for Micah's complete recovery.
May the Grace and Peace of our Lord be with you.
Thomas