Hello friends,
Two years ago today at this very hour was the most horrifying day of my life. I didn't know if I would make it through the day, but God in His infinite mercy gave me Isaiah 26:3 to sustain me.
"I will keep him in perfect peace whose mind is stayed on Me..."
That verse was a record in my head and heart for a week straight at least. A promise that I was not going to have a nervous breakdown and that God would see me through this if I concentrated on Him. It is no easy task to stay focused on God when your child's life is hanging in the balance. In His grace, God sustained us these two years and more than that has given us joy in the midst of the trials. Without joy in the Lord we would be a miserable lot. Psalm 16:11 says, "In Your presence is fullness of joy...". To me, that means that if we are spending time with our Lord we will be joyful. Joy has nothing to do with our circumstances in life. It does not mean that everything in our life is perfect and going just as we had planned. Joy is not dependent on our feelings, but on our relationship with Jesus. There are many times that we are not happy, but there is always joy. If you feel that there is no joy in your life then maybe you need to check on your relationship with Jesus.
As for Micah, he is doing well. We got moved into our new house (still in some boxes) and he has just started back to school. He still struggles to do the most basic of movements, but has been making more noise and eating more. Since moving to the new house he has eaten many things: fish, peach pie, banana, ice cream, country ham, fried potatoes, candy, etc...
He has not eaten a lot of it, but has had several bites of each and thoroughly enjoyed it. This morning I made him some garlic cheese grits, one of his favorite things. I told him that I believe one day he will marry a southern bell since he likes grits so much! He laughed, but I really do believe that. We still hold on to the promises of God for Micah. He is a most happy child when we are praying and singing to God. He will preach one day, of this I am sure, and tell people of all the wonderful things God has done for him.
Blessings,
Tina
Saturday, September 10, 2011
Monday, February 7, 2011
February 7, 2011
Hello friends,
I pray that all of you are doing well and that our good Lord is keeping you in good health. We are all doing well and have been enjoying the snow lately. We are closing in on the computer device for Micah. Bids have been sent out by the school for pricing, but today we were called to the school to look at a new product, not sure which one we'll get yet. They are all quite amazing.
The school recently purchased a new device for Micah called a gait trainer. It's basically a huge baby walker that supports him under the arms and around the chest. His first time in it he pushed himself around a bit with his left leg and drug the right one, but after a while they said he pulled the right one up and tried to use it too. His second time in it he went down the school hall and into the gymnasium. Third time he didn't want to do much.
Micah has been showing more interest in food lately, we can't give him much, but he really enjoys what we do give him. He had a swallow study done at the local hospital and passed. This means that the speech therapists can start working with him on his swallow at school.
Micah goes to Franklin again on the 9th for a pump refill. This time the meds will be given in the same dose, but will be diluted. When Micah had his pre-pump surgery trials the meds were dilute. The docs are wondering if this may help. Being dilute, they will be forced to spread out faster and over a broader area. This will of course mean that I would have to make more frequent trips because part of the pump would be full of water and so would go faster. If this has no effect on Micah then both the Franklin doc and the St. Louis doc want us to take him to Indianapolis to visit with another doctor there. He has worked with patients like Micah that have had good trials and then had no effect after the pump placement. This would most likely mean another surgery to move the catheter again. Not something that either of us want to do.
Pray that God would give us wisdom and that we would hear what He wants us to do. He will have to speak very loud and clear if it's surgery! We are doing well, still have our ups and downs (don't think that will ever change), but I believe that we have more ups than downs. God knows our hearts and our desires for our son to be well again and so we each day keep laying Micah at His feet and wait for His perfect will to be worked out in our son. Thank you all so much for sticking with us and lifting us up in prayer. God has truly given us strength and joy beyond what is natural.
Blessings,
Tina
I pray that all of you are doing well and that our good Lord is keeping you in good health. We are all doing well and have been enjoying the snow lately. We are closing in on the computer device for Micah. Bids have been sent out by the school for pricing, but today we were called to the school to look at a new product, not sure which one we'll get yet. They are all quite amazing.
The school recently purchased a new device for Micah called a gait trainer. It's basically a huge baby walker that supports him under the arms and around the chest. His first time in it he pushed himself around a bit with his left leg and drug the right one, but after a while they said he pulled the right one up and tried to use it too. His second time in it he went down the school hall and into the gymnasium. Third time he didn't want to do much.
Micah has been showing more interest in food lately, we can't give him much, but he really enjoys what we do give him. He had a swallow study done at the local hospital and passed. This means that the speech therapists can start working with him on his swallow at school.
Micah goes to Franklin again on the 9th for a pump refill. This time the meds will be given in the same dose, but will be diluted. When Micah had his pre-pump surgery trials the meds were dilute. The docs are wondering if this may help. Being dilute, they will be forced to spread out faster and over a broader area. This will of course mean that I would have to make more frequent trips because part of the pump would be full of water and so would go faster. If this has no effect on Micah then both the Franklin doc and the St. Louis doc want us to take him to Indianapolis to visit with another doctor there. He has worked with patients like Micah that have had good trials and then had no effect after the pump placement. This would most likely mean another surgery to move the catheter again. Not something that either of us want to do.
Pray that God would give us wisdom and that we would hear what He wants us to do. He will have to speak very loud and clear if it's surgery! We are doing well, still have our ups and downs (don't think that will ever change), but I believe that we have more ups than downs. God knows our hearts and our desires for our son to be well again and so we each day keep laying Micah at His feet and wait for His perfect will to be worked out in our son. Thank you all so much for sticking with us and lifting us up in prayer. God has truly given us strength and joy beyond what is natural.
Blessings,
Tina
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